Not that I am superstitious, but I had the worst imaginable triskaidekaphobia-confirming Friday the Thirteenth. I was out with Nefarious grabbing some groceries and Caitlin was off at work. It had already been a trying day, but I thought I’d be okay to do these simple chores. Nonetheless, I was really at the limits of my ability to fight the exhausting pain that was growing worse as I struggled against the throbbing weakness that was trapping me in a body that I could hardly control, pushing myself ahead literally one step at a time. I might not be able to do two more steps, but I know I can take one more. And then one more. And again. And again. I was approaching a point where I wasn’t going to make it home, so with obvious urgency I lined up with perhaps half the shopping list fulfilled. I’ll spare you the retail-rage-inducing story of me being forced to waste the last of my resources searching the store for the woman in front of me at the checkout, who’d realized she’d forgotten to find herself the perfect bag of chips and decided to go and look for it, never mind the fact that all her other groceries had been scanned already and there was a long impatient line with no other options behind her.
On one hand, making it to the car was a huge relief, but on the other hand, I wasn’t looking forward to driving home, even if it is only a ninety second drive home. I told Nefarious as we neared the house that I was worried I was going to throw up and she comically pinned herself against the car door, putting as much distance between us as possible, making a hilarious grossed-out face as she did some mental calculations as to whether she should be amused or concerned, quickly settling on both. After a sloppy and skewed parking job, I turned off the ignition to a chorus of “quick, open the door, because Caitlin will be so mad if you throw up in her car!” In a haze, I did just that (the prior, not the dreaded latter), narrowly succeeding in launching past the door sill a psychedelic stream of bile-heavy vomit with a few bits of pear to add another shade of green. I was half collapsed and hanging out, not entirely conscious, held in the car by the Mustang’s old fashioned lap belt, and when I came to a few minutes later I undid the belt and unceremoniously felll out of the car into the vomit, crawled a few feet and collapsed completely, prone.
It took a minute to find the strength to make my arm go through the motion of reaching into my pocket for the keys, which I gave to Nefarious. Without prompting, the first thing that she did was run inside to grab a pillow to put under my head to keep me comfortable. She then got the heavy bags of groceries out of the trunk and put them in the fridge as I lay there. She wanted to know whether to call 911 (something that I’d already considered), but I assured her that I was just sick to my stomach, which forced me, after fifteen minutes of lying there recovering what little I could, to drag myself into the house to avoid being over-ruled on the 911 call. Nefarious helped me to the bed in our front room, which is also the coolest room in the house, and got me some water. She really did take excellent care of me.
I was at once horrified at what she’d just been exposed to, but also very proud at how maturely she handled it and how well she kept her head on her shoulders, to say nothing of how touched I was at the kind and caring treatment. But what really broke my heart and left me not knowing how to respond, was when she said matter-of-factly but with deep sadness, something to the effect of “I know that you’re sick, but when things like this happen I think that you’re going to die soon.” It was everything I could do not to break down in tears. I did my best to reassure her that everything was back to normal by reading and playing cards, both things I could do without having to move, and I think it helped but the doubt and worry was obviously still troubling her. At every opportunity that I’ve felt strong since then, I try and pick her up and do other “feats of strength” to show her that I’m alright, but it’s difficult, because I’m not, and that’s getting much harder to hide, although I hope that Friday stays an anomaly for as long as possible. I grew up with a dad that seemed like the biggest, strongest, most indestructible guy on the planet. That was my experience. I don’t really know what to do, how to handle this, how to talk to my family about these issues… I’m not afraid of dying, and I have to admit that some days I wonder what the value is in having a long drawn out painful death, but then I think of the responsibilities that I have to Nefarious and Caitlin, and I just feel horrible guilt for having those thoughts.
Anyway, tomorrow’s another day, and I’m completely certain that it will be a much better day.
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Oh, and I liked this valedictorian speech that a girl recently gave, echoing many of the points I raised ages ago in BME editorials that quoted all the same John Taylor Gatto et al sources (the original links and formatting are gone, but a couple are still archived here and here).
While I’m posting a inspired video (and not the classic sort that I regularly send Nefarious in her email), I was happy to see Anderson Cooper beating up on political liars, not letting them get away with using the news (let alone the floor of Congress) to spread blatant disinformation… if only this was a regular occurrence, journalists doing their jobs of bringing the public the truth. Now that I give it some thought, I shouldn’t feel inspired by this — it should be the norm. But until it is — and imagine what a different world this would be if it was — a guy can dream, right?
Oh, and I don’t think I mentioned this, but I wanted to give credit to the flikr group from which I’ve been pinching the excellent distressed vignette type textures that you’ve seen here recently. Here’s that link — it’s definitely worth your while to grab them to save yourself some time making your own.
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Anyway, it’s very late and although I’m plenty exhausted I’m not at all tired, I’m going to try and find the sleepiest music I have and hope for the power of lullabies.
14 Comments
Shannon,
that was disturbing enough to read, makes me feel very sad that you and Ari had to go through this. This little girl has the love and dedication of a great father, a foundation either you and her can count on, so don’t worry too much.
I really hope you feel better today.
Remember, for her, this is more or less normal. While I do not have the level of illness you do, I do have a couple of autoimmune illness that make life harder than I think it should be, and I worry about my kids. Yesterday in the drugstore, I went down to get something and then couldn’t get up. My 8 yr old, without saying a word, just helped me up. I think all this will make them more empathetic and tolerant of others. (I’m a barfer too – and when I get a certain look on my face, my kids just pass me a trash can.)
I tell your Dad that I think you are not long for this world so he calls and tells me that you are fine. Which of course isnt at all the truth. I’m so sorry.
I didnt know there was a video to the awesome valedictorian speech. Lauren and I discussed her; Lauren was always an A student, won every award the school gave and thinks she’d have been in just the same situation the young woman expressed.
By the powers of the Universe may your burdens be lifted.
Elizabeth – Shannon is fine – as are you – remember the universe is without centre or edge – and it’s not over till the fat lady sings and pigs fly.
There is but one truly serious philosophical problem and that is suicide. Judging whether life is or is not worth living amounts to answering the fundamental question of philosophy. All the rest – whether or not the world has three dimensions, whether the mind has nine or twelve categories – comes afterwards. These are games.
I see many people die because they judge that life is not worth living. I see others paradoxically gettin killed for the ideas or illusions that give them a reason for living (what is called a reason for living is also an excellent reason for dying). I therefore conclude that the meaning of life is the most urgent of questions.
The Myth of Sisyphus
Absurdity and Suicide.
Richard I know what YOU mean and you know what I mean and it dont amount to a hill o’ beans. Maybe.
*HUG*
It does matter.
thanX for caring..
think about the olympic
contra the hebrew
“useful error”
Have you considered finding Ari some support or counseling for children of terminally ill parents? This proved to be a tremendous comfort to me when I was a child in that situation.
https://www.pbs.org/wnet/humanspark/
The Human Spark is on the web in four parts. People can buy it direct from PBS (Public TV) or download it. I downloaded it and I’ve play’d it (one DVD with the 4 parts about 3 hours} a couple times on a Phillips DVD Player – in the order 1./ deleted scenes 2./1of3 an analysis of the Neanderthal 3./2of 3 Chimps 4./3of3 Brain Matters
I think taking the time to watch it might help the current crisis.
https://www.youtube.com/watch?v=Y2spHiYOORc
Off topic but he reminds me of you whether he’s well shaved and “polite” or notsomuch.
happy to see the penny drop Liz
All,
It is in fact selfishness that makes us want Shannon to be well. I think it’s fair to say that bme/iam has given thousands of people a validation of their own personhood, their godliness if you will, in contrast with criticism and rejection they have received from those around them.
I can recall asking in the “whatever” forum sometime in the early ’00s what would become of the iam community if anything happened to Shannon. The question went unanswered but I think it’s fair to say we have all found out.
https://www.youtube.com/watch?v=DKbPUzhWeeI
What Elizabeth said —
*HUG*
Now I want to edit that comment to remove the repetitive phrase. Oh well, it’s pretty close, sigh.
I have no doubt that you will hang on for as long as you feel Ari needs you. I also have no douby that you have given her the strenght, skills, and passion to continue on forever. I lost my father and my daughter in one year. Leaving her will be a million times harder for you than it will for her. YOUR passion to be with her will keep you strong and around for a very long time. I promise.
(and i’d like to edit mine for the spelling, but my 18 month old is *helping* me type.)
Keep on keeping on, Shannon. You’re an inspiration to many and the universe to your family. That’s worth fighting for.
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