Comments on: Old Pictures VS living in the moment https://zentastic.me/blog/2012/02/17/old-pictures-vs-living-in-the-moment/ I can scarcely move or draw my breath // Let me, let me freeze again to death Wed, 06 Jan 2016 03:58:04 +0000 hourly 1 https://wordpress.org/?v=3.5.1 By: Shannon https://zentastic.me/blog/2012/02/17/old-pictures-vs-living-in-the-moment/comment-page-1/#comment-17793 Shannon Thu, 01 Mar 2012 00:24:31 +0000 https://zentastic.me/blog/?p=12060#comment-17793 We’ve talked about calcium blockers but have not tried them. My primary doctor isn’t qualified treating rare diseases and it’s been gruelling getting me in to someone with specific knowledge.

]]> By: Davros https://zentastic.me/blog/2012/02/17/old-pictures-vs-living-in-the-moment/comment-page-1/#comment-17792 Davros Thu, 01 Mar 2012 00:07:47 +0000 https://zentastic.me/blog/?p=12060#comment-17792 Hi Shannon,
Found your site while searching on TAM. Have you tried Verapamil? There is good scientific and anecdotal evidence for the treatment of TAM with calcium antagonists. The downside is that in my opinion Verapamil suppresses the symptoms that tell you that you are doing too much. As long as you are aware of this and pace yourself, the benefits can be spectacular.

]]> By: starbadger https://zentastic.me/blog/2012/02/17/old-pictures-vs-living-in-the-moment/comment-page-1/#comment-17714 starbadger Tue, 21 Feb 2012 21:27:52 +0000 https://zentastic.me/blog/?p=12060#comment-17714 I just bought: ‘Embodied Wisdom: The Collected Papers of Moshe Feldenkrais’ by Moshe Feldenkrais
https://www.amazon.com
An educational system of neuromuscular re-education known for its gentle approach, the Feldenkrais Method has been shown to dramatically improve individual functioning by increasing self-awareness and facilitating new patterns of thinking, moving, and feeling. Intended for those who need to improve their movement repertoire for professional reasons–dancers, musicians, martial artists, gymnasts, and…

]]> By: starbadger https://zentastic.me/blog/2012/02/17/old-pictures-vs-living-in-the-moment/comment-page-1/#comment-17713 starbadger Tue, 21 Feb 2012 21:11:14 +0000 https://zentastic.me/blog/?p=12060#comment-17713 https://www.amazon.com/Embodied-Wisdom-Collected-Feldenkrais-ebook/dp/B004ZZKT5C/ref=sr_1_10?ie=UTF8&qid=1329858410&sr=8-10

mind over pain

]]> By: starbadger https://zentastic.me/blog/2012/02/17/old-pictures-vs-living-in-the-moment/comment-page-1/#comment-17698 starbadger Mon, 20 Feb 2012 05:41:26 +0000 https://zentastic.me/blog/?p=12060#comment-17698 I want to learn more and more to see as beautiful what is necessary in things; then I shall be one of those who make things beautiful. Amor fati: let that be my love henceforth! I do not want to wage war against what is ugly. I do not want to accuse; I do not even want to accuse those who accuse. Looking away shall be my only negation. And all in all and on the whole: some day I wish to be only a Yes-sayer.

]]> By: Heather https://zentastic.me/blog/2012/02/17/old-pictures-vs-living-in-the-moment/comment-page-1/#comment-17692 Heather Sun, 19 Feb 2012 16:49:45 +0000 https://zentastic.me/blog/?p=12060#comment-17692 Love you always. It pains me to know how much pain you’re in. And I understand your point about C & N being better off after you leave, but I disagree. Your mind is still so active (that’s the part that gets tricky… Did your grandfather have dementia?) You still have way too much to offer. It’s OK to be a bit of a burden to people who love you. Life happens… Just be thankful that you have so much love in your life and that you’re able to give back in the ways you can (perhaps more emotional than practical.) I wish I lived closer; I’d help in any way I could.

]]> By: kumquat https://zentastic.me/blog/2012/02/17/old-pictures-vs-living-in-the-moment/comment-page-1/#comment-17687 kumquat Sun, 19 Feb 2012 04:03:54 +0000 https://zentastic.me/blog/?p=12060#comment-17687 hey shannon, a friend just recently sent this to me and i thought it was quite interesting.

https://www.mcgill.ca/research/channels/news/214078

]]> By: Mars https://zentastic.me/blog/2012/02/17/old-pictures-vs-living-in-the-moment/comment-page-1/#comment-17686 Mars Sun, 19 Feb 2012 01:46:44 +0000 https://zentastic.me/blog/?p=12060#comment-17686 No problem! There are 10 articles total listed on pubmed (https://www.ncbi.nlm.nih.gov/pubmed?term=%22tubular%20aggregate%20myopathy%22) but that is the most recent. If you want any of the articles that aren’t available as a full free text, let me know and I’ll email them to you. You doctors obviously should have access to all of them also.

]]> By: Susan https://zentastic.me/blog/2012/02/17/old-pictures-vs-living-in-the-moment/comment-page-1/#comment-17682 Susan Sat, 18 Feb 2012 20:22:45 +0000 https://zentastic.me/blog/?p=12060#comment-17682 Been a big fan of your work for years — I was one of the folks who used to send you postcards and such — and although it is heartbreaking to hear about what you’re going through and see how it has affected your interactions with the world, I wanted to thank you for posting your thoughts and experiences. You’re one of the most influential minds of our generation here in Canada, and I’m sure it’s damn hard sometimes to watch yourself go through all this, much less to talk about it comprehensively to a largely-anonymous audience.

]]> By: Shannon https://zentastic.me/blog/2012/02/17/old-pictures-vs-living-in-the-moment/comment-page-1/#comment-17679 Shannon Sat, 18 Feb 2012 14:08:22 +0000 https://zentastic.me/blog/?p=12060#comment-17679 THANK YOU! I’ll print this out for my doctors as well in case they haven’t seen it.

]]> By: Mars https://zentastic.me/blog/2012/02/17/old-pictures-vs-living-in-the-moment/comment-page-1/#comment-17674 Mars Sat, 18 Feb 2012 03:18:24 +0000 https://zentastic.me/blog/?p=12060#comment-17674 I know it doesn’t really offer much help, but I was wondering if you had read this journal article about tubular aggregate myopathy, https://www.neurologyindia.com/article.asp?issn=0028-3886;year=2010;volume=58;issue=5;spage=747;epage=751;aulast=Ghosh

I thought it was interesting, especially since it doesn’t appear there has been much research on the condition at all.

]]> By: Shannon https://zentastic.me/blog/2012/02/17/old-pictures-vs-living-in-the-moment/comment-page-1/#comment-17673 Shannon Sat, 18 Feb 2012 02:05:59 +0000 https://zentastic.me/blog/?p=12060#comment-17673 They are actually already in my lulu store, but I was going to wait to mention it until I got them so I could show off the quality. I will post the PDF files for free as well since it seems like a weird thing to charge for. Not sure if anyone is nutty enough to buy them because they’re not cheap to print on demand in full color at that size. Although in time the price will drop I suppose.

]]> By: Twwly https://zentastic.me/blog/2012/02/17/old-pictures-vs-living-in-the-moment/comment-page-1/#comment-17672 Twwly Sat, 18 Feb 2012 02:01:04 +0000 https://zentastic.me/blog/?p=12060#comment-17672 Will you be selling the blog to print books?

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